Baby G and XXXXY Syndrome: Doing Enough?

Posted September 29, 2016 by Niagara Mommy in Baby G and XXXXY Syndrome / 4 Comments

One of the things that plagues me as a parent is the idea that I’m not doing enough for my kids. Even more, that I am not enough for them. It can really screw with your head if you let it, as I learned over the past few weeks with Baby G.

Sometimes I wonder if I'm doing enough for my son. He has XXXXY Syndrome.

How He’s Handling XXXXY Syndrome

Physio – big news on this front! Baby G has gained enough confidence to climb stairs all by himself!  …

And so begins the toddler chase. Life as we know it is over.

Aside from that, Baby G is showing his chromosomes who’s in charge by cruising slowly around tables and along couches. He’s also trying to stand up from a seated position on the floor, which makes for some interesting baby yoga poses.

As well he’s going from crawling to sitting unassisted now, and while I should be overjoyed, he’s doing it by pushing himself back through his hips (in a side-split position) and swinging his legs around and out in front of him. Little cheater.

Speech and Fine Motor – The delays that go with XXXXY Syndrome are pretty obvious in Baby G’s lack of speech, but despite that, he’s still very communicative. He’s still saying “All done”, and occasionally “Mama” and “Dada”. I’ve even heard him say “Hi” a couple of times, but that’s about it as far as actual words goes. Fine motor is showing improvement, with stacking of blocks and putting toys in a small container and taking them out again. I also picked up a pack of My First Egg Shaped Crayons to start Baby G off with some basic colouring, which he seems to enjoy very much.

His speech pathologist and occupational therapist are meeting with our care provider next week to observe and make suggestions on ways for him to progress in these areas, so we’re looking forward to what they have to say.

How We’re Handling XXXXY Syndrome

A few weeks ago, we started a new round of physio appointments for Baby G, and let’s just say, he was not impressed. With more standing and balancing exercises, came more fussing and complaining from him. It made me wonder if we were doing enough to meet Baby G’s needs. And if that’s the case, how on earth were we going to manage more appointments?

After we discussed it, we spoke to our therapist and she reassured us that most of the work he needs to do centres around confidence. He has the will, the strength is coming and the confidence will follow. As long as there’s consistency, he should progress and build the confidence he needs along with it.

I was relieved, not just to know that we wouldn’t have to cram in another appointment during our already busy week, but that we are in fact doing enough, that Baby G is and will continue to progress at his own pace, and will reach each milestone in his own time.

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Hugs,

Vickie


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