Baby G and XXXXY Syndrome – Niagara Children’s Centre

Posted November 5, 2015 by Niagara Mommy in Baby G and XXXXY Syndrome / 3 Comments

I’m excited to say that Baby G has made a lot of progress in last week. While his diagnosis of 49, XXXXY Syndrome is definite, it’s difficult to tell whether his delays are because of that, or if he’s just different from his big sister.

Niagara Children's Centre is a fantastic facility devoted to helping children with special needs. So glad she's go this close by to help with her son's chromosomal abnormality

It makes me so happy to see that G has started to clap his wee little hands together, and loves playing this game with his big sister. He’s also begun to wave bye-bye and hello, and has started to respond with much more deliberateness to games like peek-a-boo and row-row-row-your-boat.

However, he’s still not crawling yet. I’m wondering if he might be double-jointed, as the research on 49, XXXXY Syndrome that I’ve read says is common. Could this be hindering crawling? I just don’t know.

In other news, I’ve spoken to Niagara Children’s Centre about his assessment. Baby G will have a full team assigned to him, including a physiotherapist, an occupational therapist, a speech pathologist, and a social worker.  I am having a home visit with his social worker next week to talk about our concerns for Baby G in these areas, as well as any financial help we might qualify for.

It was a relief to hear that because he has had a diagnosis since birth, we shouldn’t have any issues qualifying him. The official assessment is December 10th.

In the meantime, I’m enjoying the last few weeks of my maternity leave with my little guppy. While I know going back to work will be good for me…oh God, I will so miss being with him.

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Hugs,
Vickie


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