With the Christmas chaos behind us and the New Year finally here, I’ve managed to find time to share some of the progress Baby G has made while managing his XXXXY Syndrome. Sitting here with a warm cup of coffee, I’m breathing a small sigh of relief. From Christmas shopping to family dinners, there never seemed time to sit with Baby G and work on things like finger isolation, pushing, pulling, and flexibility. Amazingly enough though, he’s reached a few milestones in the last few weeks, even without focused activities.
A new year brings a fresh start, a clean slate, and the inevitable New Year’s resolution to be better or do better…at something. Maybe you want to be more active, to floss more often, to eat healthier, or quit smoking; whatever it is, you’re making a promise to yourself to achieve the goal, the ideal, the perfect version of yourself.
So, here we are again. Christmas time. A time of generosity, warmth and love. And presents, and malls, and Santa pictures, and creepy Elves on Shelves and entitled children, and crowds, and over-priced wrapping paper, and Christmas baking, and mess, and … *sigh*
As is tradition with most parents, the house is gradually being tran
sformed into a half-assed version of the holiday home decor posts we see on Pinterest. We listen patiently to our kids’ long list of unreasonably priced toys they want,no…need to have. We brave the crowded malls, searching and snatching up every trinket we can find. We buy the baking supplies and Christmas cookie cutters for an afternoon of keeping our mucus-munchers from eating raw shortbread batter, or “baking”. And after a whole month of trying to “make memories” for our booger bandits, we’re exhausted, deflated, and quite frankly, hung over from Christmas with very little show for it. That’s not what the holiday season is supposed to be about.
It’s that time of year again. Time to pick out wee outfits and wee shoes and frilly blouses they’ll never wear again and plop them down on some weird guy’s lap so they can whisper in his ear and tell him what they want for Christmas. A truly magical moment. That being said, we always seem to find a way to make this Christmas tradition happen. A lot of times, it ends up a complete gong show, but take a look at the hacks I rocked with my daughter and at the very least, you’ll have done everything humanly possible do to get that perfect picture with Santa Claus.
When it comes to being a parent, we all tend to think that we’re not doing enough. Our punishments are too harsh, our voices are too loud, or our fuses are too short. When it comes to being the parent of a kid with special needs, every so often, we also think other thoughts that are even less rational than that. But first, an update on the G-Man.